30 Things About My Migraines That You Might Not Know!

30 things about my migraines that you might not know! 

  1. The illness I live with is: Maladaptive pain disorder( but many doctors have told me I have chronic migraines) 
  2. I was diagnosed with it in the year: 2011
  3. But I had symptoms since: 2007
  4. The biggest adjustment I’ve had to make is: my social life/ my education
  5. Most people assume: I’m looking for attention
  6. The hardest part about mornings are: convincing myself to get up
  7. My favorite medical TV show is: none: Greys Anatomy
  8. A gadget I couldn’t live without is: my cell phone.. it keeps me connected to my friends when I get really sick
  9. The hardest part about nights are: when I just cannot sleep
  10. Each day I take __ pills & vitamins. Each day I take 5 pills and 2 sprays of a prescription medication, then if its very bad I take a wafer pill just to add to the fun!
  11. Regarding alternative treatments: Physio, massage, acupuncture and now on to the Ceflay anti migraine machine!
  12. If I had to choose between an invisible illness or visible I would choose:  100% visible. If people believed that I was in constant pain, half of my daily battle would be beat.
  13. Regarding working and career: Still a high school student. Struggling.
  14. People would be surprised to know: That I volunteer as much as physically possible
  15. The hardest thing to accept about my new reality has been: Loosing so many friends, and having so many authoritative figures doubt my illness
  16. Something I never thought I could do with my illness that I did was: Complete high school. I graduate this coming June
  17. The commercials about my illness: make me frustrated. They make all my peers think that all headaches can be cured from taking advil. NEWSFLASH. They can’t 
  18. Something I really miss doing since I was diagnosed is: being able spend a lot of time with my friends
  19. It was really hard to have to give up: my old life
  20. A new hobby I have taken up since my diagnosis is: blogging!
  21. If I could have one day of feeling normal again I would: Drink lots of lattes, do lots of shopping with a lot of my friends, go out to dinner with my family then round off the evening with going to a movie theater.
  22. My illness has taught me: I am a lot more mature than most adults I’ve met
  23. Want to know a secret? One thing people say that gets under my skin is: when people tell me they “would die” if they had what I have
  24. But I love it when people: understand, and treat me like a normal 18 year old
  25. My favorite motto, scripture, quote that gets me through tough times is: ” Pain. You just have to ride it out, hope it goes away on its own. Hope the wound that caused it heals. There are no solutions, no easy answers. You just breathe deep and wait for it to subside. Most of the time pain can be managed, but sometime the pain gets you when you least expect it, hits way below the belt and doesn’t let uo. Pain. You just have to fight through, because the truth is you cant outrun it… and life always makes more” Greys Anatomy
  26. When someone is diagnosed I’d like to tell them: Please do not feel alone. Start looking for others like yourself, I promise there is someone out there who has a similar condition.
  27. Something that has surprised me about living with an illness is: How rampant discrimination is.
  28. The nicest thing someone did for me when I wasn’t feeling well was: My mum brings me flowers quite frequently, which I greatly appreciate
  29. I’m involved with Invisible Illness Week because: Well, I just found this online, but I will definitely be participating in invisible illness week next year!
  30. The fact that you read this list makes me feel: like someone cares 

Original posting: http://thatmword.com/post/16590346268/30-things-about-my-migraines-you-may-not-know

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Day 2: Introduce your conditions #HAWMC

Day 2 (April 2) – Introductions
 Introduce your condition(s) to other Health Activists. What are 5 things you want them to know 
about your condition/your activism?
Well, 5 things that I would like everyone to know about my condition/activism?

5. It makes me very angry when Doctors won’t treat people who have acute pain..And I know that it isn’t that hard..
4. Patients need to exercise their rights. Even though doctors sometimes make it difficult.. persevere! 
3.  I suffer from Chronic Migraines- I have daily migraines since August 2007 I am hoping for new research in paediatric migraines as most medications are not considered safe and most are left to suffer. 
2. I take numerous medications during the course of the day to help me function. Please do not call me a “druggie” in public while I am taking them. I am only doing this so I can be a real teenager, and have a real life outside my pain. 
1.My condition can change in a HEARTBEAT. I can literally be fine on second and be in the worst pain in my life the next. Please do not judge me by how I was 10 minutes earlier. 

Day 1: Why I write #HAWMC

Day 1 (April 1) – Getting Started!
  Why you write – tell us a little bit about why you write about your health online and what got 
you started.

Well, up until I got online I thought I was the black sheep of the health world. Every time I spoke to someone and told them I had chronic pain, they assumed I had a fibromyalgia (Nothing against it!! I was just bitter at the time) as it is a common condition where I live. Explaining to the person, No I have chronic migraines then would take all their “sympathy” (lets call it) away because “everybody gets migraines” and “it’s just a headache”. Where other chronic pain conditions, you have widespread pain…. so I clearly was just a wuss in their minds… Well I eventually got to my boiling point and had to find others like myself, and I found myself online. 
Starting out in the “spoonie” community I knew there was a lot out there I was missing and there was also a lot of supports I was also missing. Learning Christine Miserandino’s Spoon Theory was a GAME CHANGER! I encourage all of my readers followers to read this! I will post the link below to her blog, and the specific entry! 

On to my actual condition. I suffer from chronic migraines, 24/7 constant pain.. yup you read it right… It started in 2007, and its been pretty continuous since then. to date I’ve been on over 25 different medications stringing from antiepileptic drugs, antipsychotic, beta blockers, blood pressure medications,NSAIDS, and numerous more… I’ve had every single opinion from doctors.. even some pretty nasty ones. Like “its all  in her head” or “she just wants some drugs” (to which I laugh.. because who wants antiepileptic drugs to abuse….? they aren’t fun to take…) to  “she most likely has a brain tumor, bring her back tomorrow for a CT scan try to get a good nights rest…Tomorrow will be a long day”  I have definitely had a long journey, and I know that I am not done it yet. Knowing that my pain could subside any day, which I have been told is highly unlikely… gives me hope some days, but mostly I know that this will be a permeant disability that I must learn how to live with.
Starting with the online community has given me hope. It has given me the idea that there are people out there living with this condition, and can actually live a normal life. I don’t know where I’d be today without you guys. You guys are #chronicallyawesome 

The spoon theory Link! She created it! and it is amazing!! 
                                            http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/