One thing that I have come across very often is medication/treatment shaming.Everyone with chronic illnesses have had their fare share with bad mediations. Someting that didn’t agree with them, didn’t help or had a bad side effect. It’s a fact of life for spoonies, but what I hate is shaming drugs that could potentially help someone. It always seems that if someone had a bad experience with this drug, they posted horror stories on every related post on the world wide web. I swear they were like the soothsayer in Julius Caesar.. Instead of them saying “beware the ides of march” they were screaming “NEVER EVER TAKE THIS MEDICATION. MY AUNTS BROTHERS SISTER IN-LAWS COUSIN HAD A SEVERE REACTION. BLACK LIST THIS MEDICATION. NEVER TAKE EVEN IF IT’S LIFESAVING” over and over again. How is this helpful? It scares patients away from potentially life changing treatment, over a 1 in 1,000,000 chance of that particular reaction.
I’m a big promotor of telling people my experience with medication, but my goal isn’t to scare them with my stories. I always want to know what I’m getting into when I begin a medication, as I believe that is my right as a patient, but I think there is a fine line between helping a person and hurting them.
What is your thoughts on these types of posts? Helpful or hurtful?