Please go check out the original post! It’s amazing
As I read your latest blog post this morning while waiting for my high school bus, I was close to tears. The repeated question”How do we do this? How do you live” is something almost all chronically ill people can relate too. The thought of living the rest of your life in a state of Ill health is daunting as is, but then having to fight for your rights as a patient, a human being, along with trying to retain your health is a massive juggling act that absolutely no one deserves.
I have a similar answer to you K, to this ever daunting question. While I was seeing a neurologist way back in 2008, she didn’t believe in the scale of my pain, so time and time again she refused any type of treatment and just told me “You could be like this the rest of your life, you need to learn how to deal with it.
As you can imagine, when she told me that I was not a happy camper, but I have found out that, her making that statement has forever changed my life. I know that I have No other option other than to go on with my life, with the occasional down days..
But I’m not perfect, I often loose sight of the goal and I lay in bed for days on end, and I let my pain take over.. But having the support from my family, friends and online community can always give me the boost to get back on the wagon!
Again, please check out their original post!
30 things about my migraines that you might not know!
- The illness I live with is: Maladaptive pain disorder( but many doctors have told me I have chronic migraines)
- I was diagnosed with it in the year: 2011
- But I had symptoms since: 2007
- The biggest adjustment I’ve had to make is: my social life/ my education
- Most people assume: I’m looking for attention
- The hardest part about mornings are: convincing myself to get up
- My favorite medical TV show is: none: Greys Anatomy
- A gadget I couldn’t live without is: my cell phone.. it keeps me connected to my friends when I get really sick
- The hardest part about nights are: when I just cannot sleep
- Each day I take __ pills & vitamins. Each day I take 5 pills and 2 sprays of a prescription medication, then if its very bad I take a wafer pill just to add to the fun!
- Regarding alternative treatments: Physio, massage, acupuncture and now on to the Ceflay anti migraine machine!
- If I had to choose between an invisible illness or visible I would choose: 100% visible. If people believed that I was in constant pain, half of my daily battle would be beat.
- Regarding working and career: Still a high school student. Struggling.
- People would be surprised to know: That I volunteer as much as physically possible
- The hardest thing to accept about my new reality has been: Loosing so many friends, and having so many authoritative figures doubt my illness
- Something I never thought I could do with my illness that I did was: Complete high school. I graduate this coming June
- The commercials about my illness: make me frustrated. They make all my peers think that all headaches can be cured from taking advil. NEWSFLASH. They can’t
- Something I really miss doing since I was diagnosed is: being able spend a lot of time with my friends
- It was really hard to have to give up: my old life
- A new hobby I have taken up since my diagnosis is: blogging!
- If I could have one day of feeling normal again I would: Drink lots of lattes, do lots of shopping with a lot of my friends, go out to dinner with my family then round off the evening with going to a movie theater.
- My illness has taught me: I am a lot more mature than most adults I’ve met
- Want to know a secret? One thing people say that gets under my skin is: when people tell me they “would die” if they had what I have
- But I love it when people: understand, and treat me like a normal 18 year old
- My favorite motto, scripture, quote that gets me through tough times is: ” Pain. You just have to ride it out, hope it goes away on its own. Hope the wound that caused it heals. There are no solutions, no easy answers. You just breathe deep and wait for it to subside. Most of the time pain can be managed, but sometime the pain gets you when you least expect it, hits way below the belt and doesn’t let uo. Pain. You just have to fight through, because the truth is you cant outrun it… and life always makes more” Greys Anatomy
- When someone is diagnosed I’d like to tell them: Please do not feel alone. Start looking for others like yourself, I promise there is someone out there who has a similar condition.
- Something that has surprised me about living with an illness is: How rampant discrimination is.
- The nicest thing someone did for me when I wasn’t feeling well was: My mum brings me flowers quite frequently, which I greatly appreciate
- I’m involved with Invisible Illness Week because: Well, I just found this online, but I will definitely be participating in invisible illness week next year!
- The fact that you read this list makes me feel: like someone cares
Original posting: http://thatmword.com/post/16590346268/30-things-about-my-migraines-you-may-not-know