When you’re diagnosed with a Chronic Illness, things change a lot.
You have finally found your answer – what’s been making you feel ill for so long… but now you have to find ways to treat the illness.
Some diseases are “easy”, or rather, straight forward to treat. Some, are as anti treatment as possible.I feel like my condition, RSD, is definitely anti-treatment.
I have had RSD for 7 years now, but have only been diagnosed for 4.5 of those years. Treatments were thrown at me from every angle… nerve blocks, surgery, implants, medications… anything I could try, I tried… But none of it worked.
I’m one of the people who’s body resists treatments in everyway. Sometimes, the treatment will work for a few months… I’ll actually feel.. .“Better.” But then I spiral back into these horrible bouts of pain and suffering that take months to crawl out of.
Over the years of this cycle, I’ve learned one VERY important thing. Life is a gift in every way, shape, and form. We can’t always see it, and it’s not always easy, but I promise it is a gift. You only get it once, so you have to live it to the fullest.
I don’t know a lot of things.
I don’t know why I have these disorders.
I don’t know if I’ll ever be pain-free again.
Some days, I don’t know how I’m going to survive a lifetime of this.
If I live exactly 70 more years, and no cure is found, that means I will spend the next 25,550 days in this same, excruciating pain. There will be good days, and there will be bad days. I just have to prepare.
I can’t live my life waiting for a cure. I can live my life hoping for one, but I can’t just sit around and wait. I can’t let chronic illness hold me back.
I can do this. I got into the school of my dreams in the program I’ve anted to be in for years. I am fully capable of this.
I’ll be in a crap ton of pain doing it, which will make it more of a struggle for me, but I can do it.
I’ve make it through these past 7 years in pain and remained in public school. I have graduated high school and I’m a member of three world-class performance ensembles. I am stronger than this pain.
And I WILL conquer these diseases.
Megan Rae Misner: I was diagnosed with Reflex Sympathetic Dystrophy Syndrome (RSD) in 2008 at the age of 14. It has sent me into a spiral of many of terrible days, but there are still quite a few relatively “good” days sprinkled throughout. I was diagnosed with Fibromyalgia on February 12, 2013 – another chronic, crippling, pain disease. But it’s not all bad…. I‘ve met a ton of people all over the world that also fight RSD and Fibromyalgia – we’ve created a sort of global community for support and friendship. I’m excited to share my life with you, and hope you enjoy my writing. Head on over to my website atwww.lifeofaspoonie.weebly.com and check out my blog!