Migraine and Headache Disorder Awareness Month

Well, if you haven’t already heard June is Migraine and Headache Disorder Awareness Month. I began the month with participating in the blog challenge, as I enjoyed my first month long blog challenge with HAWMC event,so naturally I was so excited to participate in one that was directed to my condition! But sadly, a pain flare and a VERY busy month made it next to impossible to blog daily. So I do apologize for that!

So to make up for missing the challenge, I’ve decided to write about the different aspects of this disorder that are not commonly discussed..

1. Mental Health and its Consequences

From my experiences, I have seen too many doctors who wanted to blame my pain condition on a mental health disorder, and ignore the actual pain condition.. At the time, I had no mental health problem, but as time went on and wirh little to no support from doctors, I started suffering from what I believe to be depression.

From all of the previous years of health care professionals trying to blame my pain on a mental health disorder, I was afraid to come forward with this
, fearing they would stop looking for a cure for my pain…

Now I cannot honestly say that I worked up the courage to tell a HCP. Because I didn’t… I was lucky to be put on a anti-depressant to help me sleep, that also deals with depression. Now, I know that I will one day have to face my fears of bringing this forward, but for right now the medication is helping with both aspects.

2.Guilt

I have faced overwhelming guilt on more than one occasion while dealing with my condition. I have faced it for numerous reasons, and each person has their own. My biggest source was from my mother. But not from a reason you would assume, but from her kind heart in a difficult situation.. When I get very sick, and end up in the ER, she would often apologize for everything that has happened to me, apologizing that I got sick in the first place, even though she had nothing to do with it.

Another is the burden and emotional stress I place on my family. There is one specific event in which I wish it never happened, as I could not imagine what my mother must have felt… About one week after my headache started, I was in the ER and they had ordered a CT scan as there was no other exam or test they could perform. Due to the continuous migraine I was experiencing, I was showing many of the warning signs for a tumor, sudden continuous headache, dizziness, nausea and papilledema.. It was late so they decided to push the CT to the next morning. As a 12 year old, I wasn’t told about their concerns… They only told my mother, who was all alone with me as my father was away on a business trip.. They informed her and then instructed her to take me home, and get a good nights sleep because tomorrow will be hard. Needless to say, she didn’t sleep that might

My mother just recently told me about this night, and I will never forget it.

I can never express all of my thanks to my mother. She is my rock, and I love you.

Day 11: Steel Magnolias #MHAM #MHAM13

Steel Magnolias: “That which does not kill us makes us stronger”: In what ways are you stronger as a result of living with Migraine or another Headache Disorder?

Well, I’ve found since I entered High school, I’ve literally become the poster child for being a steel magnolia.. I’ve dealt with some horrible acts of discrimination( See My Dance with Discrimination)

I believe that the events that have happened due to my chronic illness have made me more of a “no BS attitude” … If you have a distorted opinion of my disorder, or by those means any other chronic invisible illness. Fine. Keep it to yourself, because we can’t change our situation, but you can.

I have become a Health Advocate for myself and many of my friends who suffer from other conditions.I believe anyone who is sick deserves the same care, whether it be mental illness all the way to Cancer.

I believe in some ways I am stronger due to my condition, but in other senses weaker.. But thats another story for another day.

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com.

Day 10: Ocean’s Eleven #MHAM #MHAM13

Ocean’s Eleven: Who’s part of your Migraine/Headache Disorders care team? What essential roles still need to be filled?

My current pain clinic team at my local hospital includes my doctor, a nurse and vocational councillor. Outside of the hospital I also see a physiotherapist very often, and my local pharmacists always give me a helping hand in handling all of my medications..

My paediatric pain clinic had the best approach I’ve seen. At every appointment I had my pain specialist, a nurse practitioner, clinical therapist and a physiotherapist. Having them at every appointment helped them gauge my progress, and sugest new treatment options.

Currently, I am quite happy with my treatment at the adult hospital.. I’ve definitely had a few hiccups with them, but I know they are giving me the best care possible!

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com.

Day 9 (Late) : Mama Mia! #MHAM #MHAM13

Mama Mia: Money Money Money: How does living with Migraine or another Headache Disorder impact your financial situation?

Well, as I am 18, I am still dependant on my parents for finical support. As most teenagers, I decided to get a part-time job, but I went into a flare, and my employer was less than accommodating.. So I am fully dependant on my parents for all of my finical needs.

I know that my parents would do anything to help with my pain.. Reciently I was put on a newly approved medication in canada.. Sativex.

Sativex is a medicine from the Cannabinoid family. The cost of this medication was 127.00$ for a 28 day supply, as the medication goes bad in 28 days. Buying this medication was quite difficult, as they only come in boxes of 4, so we would have to shell out over 500$ each time.. The worst part on this medication was that I only used half of the bottle each month due to the dose I was on.. AKA  I threw out over half of my medication each month. wast of money..

Paying for weekly physio appointments also adds up quickly.. 65$ a trip, which quickly took up my 500$ a year coverage..

As you can see, these are only a few of the day to day costs that I encounter..

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com.

Day 8 (Late): Feed Me, Seymour #MHAM #MHAM13

Little Shop of Horrors: “Feed Me, Seymour”: What comfort foods do you reach for when you have a Migraine or Headache attack?

When I have a migraine, or increase in my daily pain, nausea usually comes along with it! So there really isn’t any comfort food that I reach for! In fact I usually avoid food at all costs because of the smell!

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com.

Day 7 (Late) : Pretty woman #MHAM #MHAM13

Pretty Woman: What do you do to look good when you feel like crap?

Well, if you’ve been following me since the begining of this blogging/twitter journey, you would know that I have a *slight*(insert sarcasm here..) to makeup! I love how it can turn my face from pain city to a normal 18 year old girl, pain and worry free!

What do you do to feel pretty?

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com.

Day 6 (Late): Premonition #MHAM #MHAM13

 Premonition: Where would you like to see treatment options for Migraine & Headache
Disorders go in the future?

Well, I believe that if there was a strong diagnosis tool, unlike the “well you kinda fit in here” system that we have now, it would take away the  discrimination that we have all faced once in our lives.  With  discrimination out of the way, further research and grants would open up the doors for further treatments.

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com.